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Discussion Starter #1
I sincerely apologise :)

Not to excuse any dodgy posts I may have made but...

In the way of an explanation the medication I'm on has kept me
wide awake for at least 48 hours :(

I can't remember all the posts and threads I've made.. partially
because I was trying to be TPOTM :(

So if I have offended any one I am Sorry. Please don't take offence
I hope you can see it is out of character.

Thanks for your patience. :)
 

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In the way of an explanation the medication I'm on has kept me
wide awake for at least 48 hours :(
Have you just started or increased the medication .....only asking because when I first started taking a controlled drug 4 years ago and again each time the dose was increased a lot of my friends told me I was horrible to them.......usally takes a week at least for my personality to regain "normal me"........:(
 

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Can't say I really noticed GJ. I can add you to my ignore list if you wish :D
 

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Discussion Starter #8
Have you just started or increased the medication .....only asking because when I first started taking a controlled drug 4 years ago and again each time the dose was increased a lot of my friends told me I was horrible to them.......usally takes a week at least for my personality to regain "normal me"........:(
I'm on a 3 weekly Chemotherapy cycle and they give me massive doses of steroids,
via a drip, at the beginning of each treatment... the effect appears to be cumulative :(
as I'm on cycle 8 out of 10.

I then take a somewhat lower dose of steroids for three days.. I'm on day 2 of these

and then a mild dose continuously.

The whole treatment is cumulative...

(but it's working :thumbs:)

I'm pleased to say I slept for for about 8 solid hours last night.

Can't say I really noticed GJ. I can add you to my ignore list if you wish :D
I thought i was already on it :lol:
 

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I hadn't noticed you being horrible GJ (Which might say a lot for my moderating skills! :eek: )

Are your chemo cycles 3 weeks on, then one off? And is your treatment part of a trial, or simply your doctors chosen regimen?

(Obviously if you don't want to answer questions about treatment, that's absolutely fine!)

Most importantly - so glad to hear you're seeing a response. :thumbs:
 

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Discussion Starter #10
Thanks Bazza :)

I have an 'infusion' (drip) of the chemo every 3 weeks... I day of treatment


For advanced prostate cancer.

It's a fairly new (2 years old) drug

And you can have up to 10 infusions if you are fit enough to tolerate the side effects.

My cancer has shrunk considerably :thumbs:

The worst side effect I have is that the chemo aggravates some arthritis in my left knee..
so I cant depress the clutch in the Spider :cry:

And I get very tired after the steroids wear off

After the 10 cycles they monitor the growth of the cancer and control it with hormone
therapy that reduces testosterone (which is what causes the cancer to grow quicker)

If that doesn't work then I can have some stronger hormone therapy and then there is
another chemo drug they can give me. Life goes on :)

{blimey I becoming an expert :eek: <---- or should that be geek}

The whole point about prostate cancer is that it incredibly common and has few
warning indications. There is a PSA test that can give an idea what's happening but
will also give false indications for many reasons. What I would advise anyone to do
is: if you are getting up to go to the loo frequently (little and often) go and see your
doctor... don't be all blokey about it and if your 'flow' has slowed down - go and see
your doctor. I had none of these symptoms.. I just passed a tiny amount of blood twice.

It usually starts from about age 50 onwards.

Since I decided to tell the world about this I've now had 6 friends go to the docs.
None have cancerous growths but 4 are now on preventative medication :thumbs:
for enlarged prostate gland.

Most men end up with prostate problems but few, in fact, die from it.
Heart attacks etc. will get you first.

Unfortunately mine is advanced and the cancer has got into my bones but
they can still do loads for me (I reckon the NHS is superb.. it certainly is at
the Hereford hospital) and don't get me started on the nurses again :swoon:

As you can see I'm quite happy to discuss this. :)
 
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I reckon the NHS is superb.. it certainly is at
the Hereford hospital) and don't get me started on the nurses again :swoon:

I recently had some investigations GJ and I can definitely vouch for the benefit of having comely nurses in attendance :)

Best of luck to you, keep up the good work ;)
 

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It's a shame that few years ago I could have discussed this subject at some length with you GJ, as I used to work in Prostate Cancer - but it's all a little shady in my memory these days - I'm a breast man now. ;)

One of the things I was going to say though was exactly as you have - with the ability that we now possess to manage prostate cancer, it is a disease that a huge number get, but very few die of. One of the people I worked with was an extremely knowledgable medic. On a flight to the US once, he managed to make a very persuasive case for all men having their prostate removed at 30 because of the prevalence of it - can't remember exactly how he sold the idea though - I went off it quite quickly!

I understand the schedule now - I was surprised when I'd wrongly read it as receiving every week! I assume the steroids are to reduce potential side effects of the chemo?

When I worked on the disease, the PSA test was just starting to be heralded as a wonder marker - but I do believe it has been somewhat discredited more recently, and they're back to the 'bend over and think of England' diagnosis method. :eek:
 

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All the best GJ, hope it all goes well.

As for getting checked out, you are so right.

I paid about 5 visits to GP before I got referred to hospital and even then it was for something different. It was only when they started doing tests that I got referred to ocology. Just waiting for the day when I get Chemo.....
 

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Discussion Starter #16
I understand the schedule now - I was surprised when I'd wrongly read it as receiving every week! I assume the steroids are to reduce potential side effects of the chemo?
Yes... and I've not felt sick at all :cool: My hair has thinned a bit and one or two
bodily functions have gone a bit strange :lol:
The chemo attacks anything that tries to grow quickly... hair, nails, mucous linings
etc. etc. but we are all different and no one can predict how it will affect an individual.

The chemo also makes you very susceptable to infections so I have to keep clear
of people at certain times during the cycles... which means I can't always go to the
Pub :cry: at weekends.

and they're back to the 'bend over and think of England' diagnosis method. :eek:
But that only takes about 10 seconds.. so it ain't a problem

All the best GJ, hope it all goes well.

As for getting checked out, you are so right.

I paid about 5 visits to GP before I got referred to hospital and even then it was for something different. It was only when they started doing tests that I got referred to oncology. Just waiting for the day when I get Chemo.....

All the very best to you... and if you're like me... chemo is not as frightening as I
thought it was going to be.

I get tremendous support from the District nurses :swoon:

and I get a specialist nurse :swoon: again! (she loves Italian cars and her hubby has a Ducati :cool:)

Mine comes from the local Hospice but if you haven't got one - Macmillan will
supply a specialist nurse who keeps an eye on you both physically and mentally.
 

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Hang in there GJ - I have never perceived your posts as offensive.
It must be my not being a native speaker - I'll go over them again to see what I missed :thumbs:
 

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Kudos for talking about your problem and treatment.....hope it is 100% successful.....:thumbs:
 
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I didn't notice anything, but given all that I think you can be excused ;)

Wishing you well GJ :thumbs:
 
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